Greenslopes Mum Beats Rare Sarcoma, Highlights Early Detection

A Greenslopes mother’s life turned unexpectedly when she discovered a lump on her foot one summer’s day in 2022. Jacqui Cooper, then 36, was diagnosed with a rare form of sarcoma, a malignant tumour more commonly found in children and adolescents. 



The Greenslopes resident was warned that the cancer could have quickly spread to her chest and lungs if left unnoticed.

Ms Cooper, a human resources coordinator, underwent six gruelling rounds of chemotherapy, which severely impacted her physical and emotional well-being.  The treatment left her bedridden and unable to care for her two-year-old son, Max, who struggled to understand his mother’s sudden absence.

Sarcoma
Photo Credit: Pexels

Despite the immense challenges, Ms Cooper remained determined to overcome the disease. While confined to her bed, she dreamt of future travels and unfulfilled goals, clinging to the hope of a life beyond cancer. After going into remission, she has remained cancer-free for the past year and a half.

Now, Ms Cooper is on the road to recovery, undergoing physiotherapy and counseling to regain her strength and adjust to life after cancer. She has returned to work, resumed walking, and can once again care for her now four-year-old son.  Her story serves as a stark reminder of the importance of early detection.

Sarcoma
Photo Credit: Unsplash

Medical experts warn that both patients and doctors often miss rare cancers like sarcomas until they have progressed significantly. Dr Wayne Nicholls, director of oncology at the Queensland Children’s Hospital, emphasised the need for more research into sarcomas, which can manifest in unusual ways and often deviate from textbook descriptions.

Dr Nicholls highlighted that sarcomas sometimes present as non-specific pain, often mistaken for a sporting injury. This delay in diagnosis can lead to the cancer spreading, making treatment more difficult and reducing survival rates.

The Australian and New Zealand Sarcoma Association (ANZA) is actively involved in sarcoma research, having conducted numerous studies and clinical trials to understand how patients respond to different treatments. The organisation stresses the importance of raising awareness and securing funding for further research to improve outcomes for sarcoma patients.

Sarcoma
Photo Credit: Unsplash

Dr Denise Caruso, ANZA’s chief executive, pointed out that while sarcomas account for only 1 per cent of adult cancers, they represent 20 per cent of childhood cancers in Australia. Sarcomas are the leading cause of cancer death in children and young adults nationwide, underscoring the urgency for more outstanding research and awareness efforts.



As Sarcoma Awareness Month continues throughout July, ANZA is raising funds to support its vital work. Medical professionals like Dr Vivek Bhadri, a medical oncologist and researcher, echo the call for greater attention to this often-overlooked cancer.  Dr Bhadri noted that Ewing sarcoma, a common type of sarcoma, is often misdiagnosed as a sports injury or growing pain due to its presentation as non-specific pain.

Jacqui Cooper’s experiences and medical experts’ warnings highlight the importance of early detection and increased research in the fight against sarcoma. As awareness grows and research progresses, the hope is that more lives will be saved and outcomes improved for those affected by this rare but devastating disease.

Published Date 23-July-2024

Greenslopes Mum Diagnosed with Unnamed Rare Cancer

A Greenslopes mum originally believed she had fractured her foot but was instead diagnosed with an unnamed, extremely rare form of cancer.



Jacqueline Cooper, a resident of Greenslopes, initially mistook a growing lump on her foot as an injury from an everyday accident involving her young son. Believing the swelling resulted from something as simple as a dropped toy, Ms Cooper’s concern grew as the lump enlarged. 

Seeking answers, she visited a podiatrist who conducted multiple scans, which led to a referral to a specialist at the Wesley Hospital. It was there that she was diagnosed with a rare type of sarcoma in her right big toe, a cancer so uncommon that it has yet to be named.

The Wesley Hospital Brisbane
Photo Credit: Google Maps

Diagnosed in 2022, Cooper underwent a series of treatments, starting with chemotherapy that did not shrink the tumour, necessitating surgical intervention. This was followed by additional chemotherapy sessions.

Now, a year and a half later, she celebrates being cancer-free but remains committed to raising awareness about her condition, especially during Sarcoma Awareness Month this July.

Ms Cooper is eager to share her story to enhance awareness and support for sarcoma and other rare cancers. She emphasises the importance of recognising the existence of support networks and resources available for those facing similar challenges. Ms Cooper’s experience highlights the emotional and medical journey faced by individuals diagnosed with rare cancers, underscoring the need for increased research and better support systems.

Sarcoma, which comprises only 1% of adult cancers and accounts for 20% of childhood cancers, is often misdiagnosed due to its symptoms resembling sports injuries or growing pains. The rarity of such cancers means that treatment advancements are slow to develop, prompting healthcare professionals to advocate for more substantial awareness and research efforts. 

Visit www.sarcoma.org.au for more information or to find support.



Published 2-July-2024

Jacqui Cooper Has a Rare Cancer, Shares Sarcoma Story to Help Raise Awareness

Jacqui Cooper said her life has been turned upside down since her diagnosis last year a rare and aggressive form of cancer on her foot. Now, she is helping raise sarcoma awareness.


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In May 2022, after two foot surgeries and multiple scans and biopsies, Ms Cooper contacted her podiatrist about a lump on her foot, thinking she may have fractured a tendon or bone. After further testing, she was referred to specialists who confirmed the devastating news – she had a sarcoma so rare that it didn’t even have a name.

A sarcoma is an extremely rare and aggressive form of cancer that begins in connective tissues like fat, muscle, bones, cartilage, and blood vessels. The cancer often presents as a harmless lump or pulled muscle sensation, meaning it is usually diagnosed in later stages when prognosis is poor.

Within just a few short months, Ms Cooper began chemotherapy treatment to fight the rare sarcoma that had emerged in her foot.

“To date I have done 6 cycles of chemo and had 3 surgeries. In the third surgery my doctor said that I am now ‘cancer free’, but I continued to do chemo to basically rid any rogue cancer cells that could be floating around in my body,” Ms Cooper said on her MyCause page.

Understandably shocked by the diagnosis, the 37-year-old Stones Corner local quickly realised the importance of family and friends during this difficult time. 

“They then become carers, amazing supports and their generosity, morals, kindness really begin to shine through. I am so grateful to have these people surrounding me in my life,” she said.

To raise awareness and funds for sarcoma research this July, which is Sarcoma Awareness Month, Ms Cooper has launched a fundraiser

“I am asking for donations not only for the two sarcoma foundations but also Pankind. My mother was diagnosed with pancreatic cancer in early 2011 and unfortunately was not lucky enough to survive it. We need to raise these important funds for people who are living with this horrible disease,” she said.

Jacqui with her mum (Photo credit: Jacqui Cooper/mycause.com.au)

PanKind The Australian Pancreatic Cancer Foundation (formerly the Avner Foundation) is the only Foundation in Australia exclusively dedicated to pancreatic cancer. 


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The Australia and New Zealand Sarcoma Association (ANZSA) is also encouraging everyone to show support by wearing yellow, hosting yellow morning teas, and donating to sarcoma research this month. Sarcoma may be rare, but with the help of donations and awareness, people like Ms Cooper are able to access life-saving treatment and support.

To know more about her journey and story, you can follow her Instagram page @jacqua622.

Published 26-July-2023